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Patient-Centered Pediatric Research Receives PCORI Funding
The network, PEDSnet, combines big data from electronic health records with family engagement
A clinical research network that includes a pediatric researcher at The Children’s Hospital of Philadelphia (CHOP) has been granted $8.6 million for a 3-year period by the Patient-Centered Outcomes Research Institute.
The network, called PEDSnet, combines big data from electronic health records with family engagement—parents will be included in research design to address concerns that are important to families, especially those living with a chronically ill child.
"Families may have a different set of priorities than the researchers,” she added, “and identifying which outcomes are important to parents and children helps to shape how the research is conducted,” said Amy Kratchman, a family consultant at CHOP who is a part of the PEDSnet steering board.
Read more at newswise.
Laundromats as a New Frontier in Community Health, Medicaid Outreach
May 29th 2025Lindsey Leininger, PhD, and Allister Chang, MPA, highlight the potential of laundromats as accessible, community-based settings to support Medicaid outreach, foster trust, and connect families with essential health and social services.
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For Better Cancer Outcomes, It’s All About Access
August 21st 2025New drugs aren't the only advances in oncology. Innovation includes collaboration between to remove barriers to remove barriers to care, according to experts who gathered for a session of the Institute for Value-Based Medicine in Arlington, Virginia.
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