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Dr Alan Balch Shares How PAF Helps Shoulder the Burden of Their Disease
The Patient Advocate Program (PAF) serves patients with chronic, life threatening or debilitating diseases by providing direct financial support as well as case management support. Alan Balch, PhD, chief executive officer, PAF, explained that PAF guides their members through insurance systems when issues of access or affordability arise for the individual.
The Patient Advocate Program (PAF) serves patients with chronic, life threatening or debilitating diseases by providing direct financial support as well as case management support. Alan Balch, PhD, chief executive officer, PAF, explained that PAF guides their members through insurance systems when issues of access or affordability arise for the individual.
“We average on behalf of the patient about 20 contacts per case with or on behalf of the patient so it’s a very intense engagement with the patient,” Dr. Balch said. “We work directly with them in the process; we don’t give them a list of resources and say ‘Go help yourself.’ We actually get on the phone with the insurance company and try to advocate on their behalf to navigate through prioritization issues or coverage denial issues.”
Dr. Balch said that PAF concentrates a majority of their work on cancer patients, as there is an acute need for insurance access and financial support; however, PAF provides guidance and support to 300 different disease areas.
STEER Data Open Door to SMA Gene Therapy for Wider Age Range of Children
March 19th 2025Delivery of onasemnogene abeparvovec into the intrathecal space was safe and effective for children with spinal muscular atrophy (SMA) aged 2 to 17 years, who had previously been shut out of receiving gene therapy.
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Exploring Racial, Ethnic Disparities in Cancer Care Prior Authorization Decisions
October 24th 2024On this episode of Managed Care Cast, we're talking with the author of a study published in the October 2024 issue of The American Journal of Managed Care® that explored prior authorization decisions in cancer care by race and ethnicity for commercially insured patients.
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Neurologists Share Tips for Securing Patient Access to Gene Therapies
March 19th 2025Tenacious efforts at every level, from the individual clinician to the hospital to the state to Congress, will be needed to make sure patients can access life-saving gene therapies for neuromuscular diseases.
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Examining Low-Value Cancer Care Trends Amidst the COVID-19 Pandemic
April 25th 2024On this episode of Managed Care Cast, we're talking with the authors of a study published in the April 2024 issue of The American Journal of Managed Care® about their findings on the rates of low-value cancer care services throughout the COVID-19 pandemic.
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EMBARK Data Show Continued Improvements With DMD Gene Therapy
March 19th 2025Data from the EMBARK trial of delandistrogene moxeparvovec in patients with Duchenne muscular dystrophy (DMD) show that benefits in functional outcomes, gene expression, and muscle imaging persist 2 years after receiving the gene therapy.
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How Access to SMA Treatment Varies Globally and by Insurance Type
March 18th 2025Posters presented at the 2025 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference show that therapeutic advances in treating spinal muscular atrophy (SMA) are not uniformly making it into the hands of patients who could benefit.
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