Loosened Waiver Rules for States
As Republicans move forward with fierce opposition to their Affordable Care Act replacement bill, the Trump administration is making changes to Obamacare. HHS has announced it is loosening restrictions on the use of section 1332 waivers for states to receive funding, reported Reuters. The waivers help states offset costs for high-risk patients, state-operated reinsurance programs, and other premium-stabilization programs. The Obama administration had been tightening the use of these waivers.
Minnesota Takes Aim at Rising Premiums
A new reinsurance program in Minnesota would use nearly $400 million every 2 years to help prevent rising premiums. AP reported that the bill, introduced by the state’s Republican-controlled House, uses the money to help insurers cover expensive claims and prevent premiums from going up. While Republicans claimed the move could reduce rates for people who buy insurance on the individual market by up to 18%, Democrats almost unanimously voted against the bill because they felt the cost was too high with no guarantee of success.
Price Concerned Over Genetic Information Bill
The House bill that would allow employers access to workers’ genetic information has one high-profile individual with reservations: HHS Secretary Tom Price. According to STAT, Price expressed concerns with the idea of the bill while on NBC’s “Meet the Press.” The bill skirts a current law that prohibits employers from requiring genetic testing by incorporating the tests into workplace wellness programs. Employees who opt out could face financial penalties under the new bill.
Neurologists Share Tips for Securing Patient Access to Gene Therapies
March 19th 2025Tenacious efforts at every level, from the individual clinician to the hospital to the state to Congress, will be needed to make sure patients can access life-saving gene therapies for neuromuscular diseases.
Read More
Bustling Gene Therapy Pipeline for Neuromuscular Diseases Brings Thorny Questions to the Clinic
March 18th 2025The rapid development of gene therapy options for treating neuromuscular diseases has created new therapeutic options but also logistical hurdles and a need for complex discussions between clinicians and families.
Read More
Neurologists Share Tips for Securing Patient Access to Gene Therapies
March 19th 2025Tenacious efforts at every level, from the individual clinician to the hospital to the state to Congress, will be needed to make sure patients can access life-saving gene therapies for neuromuscular diseases.
Read More
Bustling Gene Therapy Pipeline for Neuromuscular Diseases Brings Thorny Questions to the Clinic
March 18th 2025The rapid development of gene therapy options for treating neuromuscular diseases has created new therapeutic options but also logistical hurdles and a need for complex discussions between clinicians and families.
Read More
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