A roundup of top healthcare news stories: January 27, 2017.
Requests for Orphan Drug Designations Rise Sharply
The number of requests from pharmaceutical companies for an orphan drug designation from the FDA rose 23% from 2015 to 2016. According to STAT, with orphan drugs meant for small populations, drug makers can charge higher prices and insurers won’t fight the high costs too much. The orphan drug designation was created to incentivize drug makers to create medicines for rare diseases, but there has been recent concern that the companies are distorting the Orphan Drug Act’s original purpose with some drugs being submitted actually intended to be used more broadly.
Trump Cancels Obamacare Ads While GOP Struggles With a Replacement
Annual open enrollment under the Affordable Care Act (ACA) ends on January 31, but the Trump administration has pulled advertisements encouraging people to sign up for coverage, reported The New York Times. With President Donald Trump and Republicans set on repealing the law, the administration is looking to save money by not promoting a healthcare law that might not exist in a few months. Meanwhile, the GOP is meeting in Philadelphia for a retreat. According to Kaiser Health News, Republicans are having trouble agreeing on how to repeal and replace the ACA. One strategy may be to makes changes to the law instead of a single replacement.
Former HHS Secretary to Lead American University
Sylvia Mathews Burwell has already found a new job after leaving her post as secretary of HHS under the Obama administration. Burwell has been named the next president of American University, and she will assume responsibilities on June 1, 2017, according to a press release from the university. During her tenure at HHS, Burwell oversaw the implementation of the ACA, and led efforts to combat Ebola and Zika virus outbreaks.
Solving the Transition Conundrum as More Children With Muscular Dystrophy Live to Adulthood
March 17th 2025Learning from examples like congenital heart disease and cystic fibrosis can help health systems and clinicians prepare to care for an influx of patients with neuromuscular diseases as they reach adulthood thanks to transformative therapy advances.
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Oz Confirmation Hearing Probes Vision for Medicaid but Coalesces Around Well-Being
March 14th 2025Mehmet Oz, MD, the nominee to lead CMS under the Trump administration, testified in a confirmation hearing before the Senate Finance Committee, where he found common ground on improving outcomes through healthier lifestyle choices but encountered repeated questions on potential Medicaid cuts.
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As Claims Denials Surge, AI and Data-Driven Insights Equip Clinicians, Hospitals to Fight Back
March 13th 2025As health care costs continue to rise and the burden of chronic disease grows, data-driven insights will be essential in shaping the future of patient care, according to experts from Komodo Health and SmarterDx.
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Regenerating Neurons, Muscle, and Hope in the Field of Muscular Dystrophy
March 13th 2025The 2025 Muscular Dystrophy Association Clinical & Scientific Conference, convening in Dallas, Texas, from March 16-18, will feature clinical updates, expert insights, and breaking trial findings that sum up to a new frontier of care for neuromuscular diseases.
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