Funding proposal includes gene therapies for sickle cell disease (SCD); draft legislation aims to address long COVID challenges; efforts are underway to prevent a summer surge.
Medicare Proposes Increased Hospital Funding for Sickle Cell Gene Therapies
CMS has proposed providing hospitals with an additional 75% of estimated costs for new gene therapies for sickle cell disease, surpassing the usual 65% add-on payment, according to Axios. This move aims to incentivize hospitals to offer these costly treatments, particularly benefiting lower-income patients covered by Medicaid. The proposal follows FDA approval of 2 sickle cell therapies in December (exagamglogene autotemcel and lovotibeglogene autotemcel) and includes a 2.6% increase in Medicare payments to hospitals for fiscal year 2025.
Sanders Proposes $1 Billion Long COVID Research Initiative
Senator Bernie Sanders (I, Vermont) has unveiled a draft proposal for long COVID moonshot legislation of $1 billion for research over the next decade, according to CIDRAP. Seeking input from stakeholders, the draft legislation also includes provisions for establishing a centralized research entity, clinical trials, databases, and ongoing education and support efforts. Researchers and advocates welcome the initiative as a crucial step toward addressing the challenges posed by long COVID.
Rise in Mpox Cases Sparks Concerns, Calls for Targeted Action
With a significant increase in mpox cases compared with the same period last year, health officials are urging targeted action to address the trend, according to The Hill. Concerns about inequitable access to immunization highlight the need for expanded vaccination efforts, especially within LGBTQ communities. Initiatives like the "Summer of Pride" aim to raise awareness and promote vaccination to prevent further spread of the disease.
Laundromats as a New Frontier in Community Health, Medicaid Outreach
May 29th 2025Lindsey Leininger, PhD, and Allister Chang, MPA, highlight the potential of laundromats as accessible, community-based settings to support Medicaid outreach, foster trust, and connect families with essential health and social services.
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Alzheimer Disease and Related Dementias Cause Surging Economic Burden for Minoritized Communities
June 5th 2025African American and Latino older adults with Alzheimer disease and related dementias and their families are likely to face disproportionately high burdens, primarily associated with unpaid caregiving, suggesting the need for policies that may reduce economic burdens for all US residents.
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