Gene therapy provides an opportunity for every patient to become not a patient, to become an individual, and you can’t put a cost on that, explained Sophie Schmitz, BA, MA, managing partner, Partners4Access.
Gene therapy provides an opportunity for every patient to become not a patient, to become an individual, and you can’t put a cost on that, explained Sophie Schmitz, BA, MA, managing partner, Partners4Access.
Transcript
Why is it important for payers to keep in mind the value of high-cost gene therapies and not just their price?
The thing here with gene therapy, what we need to understand, is yes, they might seem costly, certainly at the outset, but we’re talking about therapies that impact a patient over the lifetime of their disease. I’d like to take hemophilia as an example, actually, of a disease which is obviously lifelong, and patients need to be very attuned to their disease to even be able to survive. If we look at that disease, the value to patient of not having to prophylactically take medicine, the value to a patient of having good bone health, and also, as well, the value to a patient of getting rid of the badge of that disease, is something that’s quite difficult to just value from a monetary perspective; it’s much bigger than that. I think gene therapy provides an opportunity for every patient to become not a patient, to become an individual, and you can’t put a cost on that.
The Importance of Examining and Preventing Atrial Fibrillation
August 29th 2023At this year’s American Society for Preventive Cardiology Congress on CVD Prevention, Emelia J. Benjamin, MD, ScM, delivered the Honorary Fellow Award Lecture, “The Imperative to Focus on the Prevention of Atrial Fibrillation,” as the recipient of this year’s Honorary Fellow of the American Society for Preventive Cardiology award.
Listen
Pediatric Alopecia Areata Risks and Disparities Vary by Race and Ethnicity
October 30th 2024Alopecia areata is more prevalent in Hispanic, Asian/Pacific Islander, and Black children than in non-Hispanic White children, with some Asian subgroups having a higher risk compared with those of Chinese ethnicity.
Read More
Promoting Equity in Public Health: Policy, Investment, and Community Engagement Solutions
June 28th 2022On this episode of Managed Care Cast, we speak with Georges C. Benjamin, MD, executive director of the American Public Health Association, on the core takeaways of his keynote session at AHIP 2022 on public health policy and other solutions to promote equitable health and well-being.
Listen
Studies Highlight Heavy Burden on Caregivers of Patients With DMD
October 28th 2024Caregivers of both adults and children with Duchenne muscular dystrophy (DMD) face significant disruptions to their work productivity and personal lives, underscoring the need for better treatments and support systems.
Read More