The Health IT Policy Committee (HITPC) adopted recommendations from its Consumer Empowerment Workgroup on patient-generated health data (PGHD) at its December meeting and is expected to finalize its complete Stage 3 recommendations in February.
The Health IT Policy Committee (HITPC) adopted recommendations from its Consumer Empowerment Workgroup on patient-generated health data (PGHD) at its December meeting and is expected to finalize its complete Stage 3 recommendations in February.
The committee reaffirmed that its objective--"patients [should] have the ability to electronically submit patient-generated health information"--should be part of Meaningful Use Stage 3, according to a report from a technical expert panel convened at the request of the Office of the National Coordinator.
This data, which could be submitted by a patient, caregiver or other designee, "could be an observation, a test result, a device finding, a confirmation or a change/correction/addition of data in the patient's existing health record"--data collected outside the clinical visit, explains a blog post at HealthITBuzz.
"As 2013 draws to a close, we are pleased to report that a lot of progress has made," writes Mary Jo Deering, senior policy advisor in the Office of Policy and Planning, of the ONC's efforts to better understand and implement policies concerning this data.
Read the full story here: http://bit.ly/19FezPe
Source: Fierce Health IT
STEER Data Open Door to SMA Gene Therapy for Wider Age Range of Children
March 19th 2025Delivery of onasemnogene abeparvovec into the intrathecal space was safe and effective for children with spinal muscular atrophy (SMA) aged 2 to 17 years, who had previously been shut out of receiving gene therapy.
Read More
Bustling Gene Therapy Pipeline for Neuromuscular Diseases Brings Thorny Questions to the Clinic
March 18th 2025The rapid development of gene therapy options for treating neuromuscular diseases has created new therapeutic options but also logistical hurdles and a need for complex discussions between clinicians and families.
Read More