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Need to Establish National Healthcare Standards for Children, Study Suggests
The study published in Health Affairs recommends standardization of benefit plans across states for children, especially those related to developmental abilities.
Instead of establishing a federal gold standard for children's health, HHS has allowed states to choose from a menu of benchmark plans, a decision that runs contrary to the recommendations from the Institute of Medicine.
As a result, the Affordable Care Act's promise of essential health benefits has not been realized, according to Aimee Grace, MD, MPH, a fellow at Children's National Health System. Dr Grace joined a panel of experts at a Health Affairs forum devoted to children's health.
In a new report, Dr Grace and her colleagues used plan summaries from the Center for Consumer Information and Insurance Oversight to compare the benefits from every state and Washington, DC, and determine which services, specifically those relevant to children, were included and excluded.
Read the complete article here: http://bit.ly/1yzWfzu
Neurologists Share Tips for Securing Patient Access to Gene Therapies
March 19th 2025Tenacious efforts at every level, from the individual clinician to the hospital to the state to Congress, will be needed to make sure patients can access life-saving gene therapies for neuromuscular diseases.
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Bustling Gene Therapy Pipeline for Neuromuscular Diseases Brings Thorny Questions to the Clinic
March 18th 2025The rapid development of gene therapy options for treating neuromuscular diseases has created new therapeutic options but also logistical hurdles and a need for complex discussions between clinicians and families.
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