The National Heart, Lung, and Blood Institute has released the first-ever COPD National Action Plan, which is aimed at ending the illness.
Chronic obstructive pulmonary disease (COPD) is the third-leading cause of death in the United States, and a partnership of federal and non-federal organizations is looking to end the illness.
The National Heart, Lung, and Blood Institute (NHLBI) has released the first-ever COPD National Action Plan. The plan is a patient-centered roadmap and was unveiled at the American Thoracic Society International Conference.
“This plan represents a new understanding of what it takes, at every level, to minimize the burden of COPD,” Gary H. Gibbons, MD, director of NHLBI, said in a statement. “Through thoughtful collaboration with federal agencies, patients, advocates, and researchers, we will help the millions who continue to endure this debilitating disease.”
There are 16 million Americans diagnosed with COPD, which costs the country more than $32 billion a year. However, there are likely millions more who do not know they have it, according to the National Institutes of Health, which NHLBI is a part of.
While there is no cure for COPD, it can be preventable and is highly treatable. There are 5 goals for the COPD National Action Plan:
The plan was informed through organized workshops between stakeholders of the COPD community, including patients and families, healthcare providers, academics, and industry representatives.
“The enthusiasm of members from the COPD community in sharing its insights has been invaluable throughout this process,” said James P. Kiley, PhD, director of NHLBI’s Division of Lung Diseases. “The different perspectives brought by those who live these issues every day contributed to making this a clear, coordinated way forward for all stakeholders. We look forward to working together to improve the lives of those living with COPD.”
STEER Data Open Door to SMA Gene Therapy for Wider Age Range of Children
March 19th 2025Delivery of onasemnogene abeparvovec into the intrathecal space was safe and effective for children with spinal muscular atrophy (SMA) aged 2 to 17 years, who had previously been shut out of receiving gene therapy.
Read More
Neurologists Share Tips for Securing Patient Access to Gene Therapies
March 19th 2025Tenacious efforts at every level, from the individual clinician to the hospital to the state to Congress, will be needed to make sure patients can access life-saving gene therapies for neuromuscular diseases.
Read More