When making changes in healthcare, the patient’s voice is rarely at the table, said Martha Gaines, MD, JD, LLM, founder and director of The Center for Patient Partnerships, clinical professor of law, University of Wisconsin Law School.
When making changes in healthcare, the patient’s voice is rarely at the table, said Martha Gaines, MD, JD, LLM, founder and director of The Center for Patient Partnerships, clinical professor of law, University of Wisconsin Law School.
Transcript
What are the fundamentals of The Center for Patient Partnerships and how does this help produce patient-centered care?
The 4 pillars are education, advocacy, research, and system change. Education translates across or spreads across all 4, everything we do, basically. There are always students involved, graduate students and now some undergraduate students. So, education is about saying, “What should the system be like, how could healthcare be better, and how can we help make it that way?” but from the angle of engaging, including, and incorporating the patient’s voice or patients’ voices in healthcare at every level at every change.
Today, in the United States, we make a lot of changes in healthcare, but we rarely have patients’ voices at the table when we’re making them, and it’s very important to have everybody who’s going to experience the change around the table so that we don’t make change after change after change that turns out to backfire on us because it doesn’t take care of the user.
The Importance of Examining and Preventing Atrial Fibrillation
August 29th 2023At this year’s American Society for Preventive Cardiology Congress on CVD Prevention, Emelia J. Benjamin, MD, ScM, delivered the Honorary Fellow Award Lecture, “The Imperative to Focus on the Prevention of Atrial Fibrillation,” as the recipient of this year’s Honorary Fellow of the American Society for Preventive Cardiology award.
Listen
BCI Shows Promise of Personalized Endocrine Therapy in Breast Cancer
January 15th 2025The Breast Cancer Index (BCI) may help identify patients with low-risk breast cancer who could potentially benefit from reduced endocrine therapy, leading to improved quality of life and potentially lower health care costs.
Read More
Promoting Equity in Public Health: Policy, Investment, and Community Engagement Solutions
June 28th 2022On this episode of Managed Care Cast, we speak with Georges C. Benjamin, MD, executive director of the American Public Health Association, on the core takeaways of his keynote session at AHIP 2022 on public health policy and other solutions to promote equitable health and well-being.
Listen
Patient-Reported QOL Outcomes of Initial CLL Treatments: ASH 2024
January 8th 2025Quality-of-life (QOL) outcomes vary widely for patients receiving first-line treatment for chronic lymphocytic leukemia (CLL), according to research presented at the 2024 American Society of Hematology (ASH) meeting.
Read More